
We named our organization after a very sweet young boy on the Autism Spectrum, his name is Saint.
As Saints Mother and Founder of this organization, I’ve come to understand a common journey many go thru when raising a child with ASD.
Around the age of 18months we started to notice some developmental differences in Saint. We started Early Intervention Speech Therapy thru the state, per recommendation by our pediatrician. They recognized him as developmentally delayed and offered very minimal options to help assist him better in life, besides an hour of speech, once a month..
He was in daycare at the time, after his first 2 weeks the workers told me they could no longer care for Saint and believed he had special needs. This moment in time BROKE ME… I was petrified to see how closed off the world was to help us. Society had shut the door on us, really. At the time, I had no idea what sensory needs were. Why he was having meltdowns, or irritability. They made it seem like his constant need for movement and toe walking was some sort of default.. Like he was broken…
Little did i know it was that feeling of the two of us being broken, and shunned by society that would drive me to start putting the pieces together… but first, i had to find the wrong pieces, the right pieces, the abstract pieces, and really i just needed to find PEACE with everything…
Side Note:
(I no longer take it personally that he was banned from daycare, as I’ve grown to understand these places are simply not equipped to provide proper support to special needs individuals. He was better off w/o them. But it needs to be talked about how the gap it creates in society when we have parents losing their jobs over not finding childcare for their special needs children. Then relying on full time therapy to provide child care. Let me emphasize “Full time therapy is frequently the only option out there for parents, when looking for childcare for children on the spectrum.”)
Continued:
Saint was officially diagnosed with Autism Spectrum Disorder at 2 years old. I then went on to find places that specialized in Autism Therapies. We tried just about every kind of therapy. Which resulted in me discovering that not every therapy is created equal. In fact some therapies are considered controversial. I went down the long rabbit hole of Autism politics and became educated on a multitude of varying opinions. Since I’ve learned not to radicalize ideas and instead foster the concept of being open to change in opinion given new information. I really lean towards finding neutral points of view and trying to consider why the variety in perspectives exists in the first place.
“I was once asked why I don’t participate in anti-war demonstrations. I said that I will never do that, but as soon as you have a pro-peace rally, I’ll be there.”
– Mother Teresa
Our mission is not to put down any kind of therapy. Our mission is to ENLIGHTEN & EVOLVE people into utilizing practices that protect natural autistic expression.
For example thru metaphor: “We could be off put by how harmful fast-food is for our kids, we even have the freedom to choose not to allow our kids to have it. Although, this will not stop others from feeding their kids fast-food. No matter how much you try to inform them the ingredients aren’t right. Our personal views may not always reach other people but…
WHAT WE CAN DO is advocate for the fast-food chains to provide healthier food. Which would benefit EVERYONE.”
This is our model when it comes to therapy, school, and home settings.
How can we provide knowledge to those working with autistic children??? Well,
We can offer FREE training seminars teaching ALL who are interested. So we created the
NDAC Certificate
(Neurodiversity Affirming Care Certificate).
To find out more please contact:
Saintsautismfoundation@gmail.com